June 20, 2010
I have lived with Myasthenia Gravis for about 14 years. Fortunately, when I was first having symptoms, our family Dr. "guessed" that it was MG & sent me to a neurologist. I have never had a crisis so bad that I've ended up in the hospital (thank God), but my life (dong simple activities like eating and talking) is affected, in varying degrees. Since the beginning of my diagnosis, I have been very grateful for the opportunity to go to a MG support group meeting, even if no one has symptoms exactly like mine.
I've personally experienced the results of this organization in...
giving me help when I felt the need to change neurologists.
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
MY ROLE:Client Served & I haI've been cocharing the Wichita Myasthenia Gravis support group.