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paddy1943

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1 reviews

Review for Myasthenia Gravis Association Of Kansas City, Kansas City, MO, USA

Rating: 4 stars  

I have lived with Myasthenia Gravis for about 14 years. Fortunately, when I was first having symptoms, our family Dr. "guessed" that it was MG & sent me to a neurologist. I have never had a crisis so bad that I've ended up in the hospital (thank God), but my life (dong simple activities like eating and talking) is affected, in varying degrees. Since the beginning of my diagnosis, I have been very grateful for the opportunity to go to a MG support group meeting, even if no one has symptoms exactly like mine.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

Role:  Client Served & I haI've been cocharing the Wichita Myasthenia Gravis support group.