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THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC
February 26, 2009

Parent Project Muscular Dystrophy is the best non-profit organization I have worked with. The staff is very friendly, helpful, and accommodating. We had a unique situation where we had a group of people who wanted to fundraise for Duchenne Muscular Dystrophy through the “Run for Our Sons” program, but did not want to travel to the already established events. When approached about doing something “outside the box” and local for us, the answer was not only “yes”, but what can we do to help. I was equally impressed with PPMD’s attention to little details. All the thank you letters sent out to our donors were specific when they could be, for example if the donation was for hula hoops, kid’s dash, raffle, etc the thank you said just that. The letters where also very intentional with a sincere tone that made you feel like this was not just another generic thank you letter. Their awareness campaigns are creative and fun to participate in and their use of up-to-date technology through blogs, fundraising sites, and the virtual community has been a tremendous resource for families, while allowing donors to access what they want/need with ease as well. This organization is big enough to make HUGE impacts in the DMD community, but still small enough to care about everyone who comes in contact with them.

The Great!

I've personally experienced the results of this organization in...

through my friend's faces, knowing that they are not alone in dealing with their fight with DMD.

Ways to make it better...

If I had to make changes to this organization, I would...

continue to run things as they are today!

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

working with such caring individuals.

The kinds of staff and volunteers that I met were...

extremely accommodating and helpful.

If this organization had 10 million bucks, it could...

find a cure to this awful disease

Ways to make it better...

my experience was great.

In my opinion, the biggest challenges facing this organization are...

the competition from other non-profits, so continuing to get the word out about DMD and why people should care about this specific cause.

One thing I'd also say is that...

I had a great experience working with PPMD and I am looking forward to working with them again in the future.

When was your last experience with this nonprofit?

2009

MY ROLE:
Client Served & Raised over $60,000 through "Run for Our Sons".