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Danny's Parents

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1 reviews

Review for Children's Brain Tumor Foundation Inc, New York, NY, USA

Rating: 5 stars  

Danny came into this world on a rainy day in October. He was born 15 minutes after we arrived at the hospital and instantly brought joy to our entire family. At 6 weeks old, Danny was diagnosed with Pyloric Stenosis. Then at 2 months old, he was diagnosed with a bi-lateral hernia. Danny was no stranger to the hospital by this time in his short life. Things settled down after a while and we thought the worst was over for him--just bumps and bruises from here on out. At 26 months old, we thought Danny had a routine sinus infection. We went to see his doctor; who examined him and sent us for a Cat Scan. Then we went to the emergency room at Schneider's Children's Hospital.. We were told that he had a brain tumor. Medulloblastoma. After 2 tumor resections, chemo, and radiation - Danny surrounded by his family left us as quickly as he arrived. Danny loved home made chocolate chip cookies, Winnie the Pooh, Robin from Batman, Buzz & Woody, Rocco's Pizza, and the movie Back Draft. He wanted to be a fireman and a golfer just like his Poppy. Danny taught us many things while he was with us and still teaches us things today. He went through so much and never complained. He always had a smile and a hug for everyone. We miss him terribly still after 11 years, but still feel his presence in our hearts everyday. In his honor, we hold a golf outing every year to memorialize him and raise funds and awareness for the CBTF. We never could have gotten through this with out the love and support from our family and friends. Because as Danny would always remind us: "You go - We go!" We have been luck enough to be able to live that motto with help of the CBTF. This organization helps families like us everyday. Families that have to journey down the path that we have traveled and those who have the path of surviorship. That is the goal. We have people from all different backgrounds that are all working together for the same common goal. We want to stop this cancer so no other child and their familes have to join us on this journey. If you have read this far, please join us in our efforts. This is a great cause that will let you know EXACTLY where the funds are going -- to research, information, and help directly to those who need it. It has been an honor to be apart of the CBTF. Timothy and Patricia Jegle

What I've enjoyed the most about my experience with this nonprofit is...

the many new programs they have put together over the years.

The kinds of staff and volunteers that I met were...

some of the hardest workers and compasionate people.

If this organization had 10 million bucks, it could...

fund more research to end/control this cancer.

Ways to make it better...

more people knew of this cancer before a family or friend was diagnosed.

In my opinion, the biggest challenges facing this organization are...


One thing I'd also say is that...

the CBTF understands the where and why most people go through in dealing with both the cancer and the treatment.

When was your last experience with this nonprofit?


Role:  Board Member & Golf Outing for the CBTF.