June 12, 2010
A trip to the ER back in June 2008 is what led to my learning about the LAM foundation. I went to the ER thinking I had gall stones only to discover I had a collapsed lung. My family and I wanted to know why - I wasn't in an accident -I had never had any issues with my lungs before. If it wasn't for the LAM foundation and their efforts to ensure doctors and pulmonologists know about this disease I may have been sent home without any real diagnosis or treatment. The pulmonologist had no other patients with LAM but knew that the recommended treatment was a pleurodesis to prevent future lung collapse. The LAM foundation made it so I did not have to suffer thru multiple lung collapses and trips to the ER and they provided me with information about the disease. Six years prior to being diagnosed with LAM I had emergency surgery to remove my kidney due to AMLs which I know now have a correlation with LAM. Again, the LAM foundation was instrumental with providing the information, support and medical contacts I needed and I feel truly lucky that the LAM foundation exists. What they have done in such a small amount of time is truly awe inspiring. The women they have helped and the research they are responsible for -it is priceless.
I've personally experienced the results of this organization in...
ensuring the disease does not go misdiagnosed. I was one of the lucky ones - and that is because of the LAM Foundation.
How frequently have you been involved with the organization?
About every six months
When was your last experience with this nonprofit?
Client Served & I have received invaluable support and information from the LAM Foundation.