June 12, 2010
I was diagnosed 16 years ago - before the LAM Foundation, before there was any kind of support anywhere. I was told I would live maybe 4 but certainly no more than 8 years. I certainly felt very alone and had no where to turn for support in this journey. The LAM Foundation has become a lifeline for women diagnosed with LAM and their friends and family. No longer does one need to feel so alone and hopeless. The LAM Foundation has been invaluable for so many through the wealth of easily understandable information, the listserve to connect women no matter where in the world we live, the visibility at conferences, the commitment to teach the medical community to recognize symptoms of LAM, the inspiration and funding to support research... I went from feeling i had a death sentence to feeling every reason to be hope-filled in living a long and meaningful life, doing what I love most. I am unspeakably grateful.
I've personally experienced the results of this organization in...
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
MY ROLE:Client Served & I've received the benefits of their support.