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emma1

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LAM Foundation
June 11, 2010

I was diagnosed with LAM in 1990. Sue Byrnes called me in 1995 and I felt such relief that there are others out there with this disease. She and Dr. McCormack and everyone involved with the LAM foundation is kind and helpful. My doctors rely on the research coming out of the LAM foundation.

The Great!

I've personally experienced the results of this organization in...

Being able to participate in the NIH protocol. Finding out about a drug to minimize chylous fluid in my system.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

The personal touch they give each of us. I feel that the people on staff care about each person individually.

The kinds of staff and volunteers that I met were...

Very kind and also professional.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

MY ROLE:
Client Served & Was contacted by them when they were organized. I have volunteered for them over the years, but mostly received benefits from their research.