June 11, 2010
Hi, after 2 brain operations, radiotherapy and then an operation on his spine, we finally became aware of VHL. we thought this was soemthing that effected only my cousin, now, thanks to VHLFA, we know so much more. god bless you, and hopefully our group will grow, without too many more afflicted people. VHL is a minefiled that is never cleared.
I've personally experienced the results of this organization in...
undersatnding that our family is not alone. hearing from others has improved our comprehension of my cousins situation.
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
MY ROLE:General Member of the Public & My cousin has VHL. we didn't know about until......