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phil4

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1 reviews

Review for VHL ALLIANCE, Boston, MA, USA

Rating: 5 stars  

Hi, after 2 brain operations, radiotherapy and then an operation on his spine, we finally became aware of VHL. we thought this was soemthing that effected only my cousin, now, thanks to VHLFA, we know so much more. god bless you, and hopefully our group will grow, without too many more afflicted people. VHL is a minefiled that is never cleared.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

Role:  General Member of the Public & My cousin has VHL. we didn't know about until......