June 10, 2010
I was the first in my family diagnosed with VHL, although in hindsight several cousins had already died from complications arising from it. VHLFA provided education, support, and encouragement through the process of getting me and my family tested, and helping plan our attack. Thank you, VHLFA!
I've personally experienced the results of this organization in...
education and support.
The kinds of staff and volunteers that I met were...
absolutely incredible in their knowledge and willingness to help.
How frequently have you been involved with the organization?
About every six months
When was your last experience with this nonprofit?
MY ROLE:Client Served & Received education and support.