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tallt

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1 reviews

Review for VHL ALLIANCE, Boston, MA, USA

Rating: 5 stars  

I was the first in my family diagnosed with VHL, although in hindsight several cousins had already died from complications arising from it. VHLFA provided education, support, and encouragement through the process of getting me and my family tested, and helping plan our attack. Thank you, VHLFA!

The kinds of staff and volunteers that I met were...

absolutely incredible in their knowledge and willingness to help.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

Role:  Client Served & Received education and support.