June 10, 2010
I was diagnosed with VHL in 1981. I have called their 800 hotline for help many times. They not only recommend doctors,and Hospitals they supply comfort and hope for those of us with the disease. I find that VHL family alliance is a big part of my live.
I've personally experienced the results of this organization in...
My hemangioblastomas and my RCC.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
MY ROLE:Client Served & I received help from this great organization. I am also a quilter and I do lots of quilts for charity.