June 10, 2010
My father has VHL. We never knew what VHL was in the first place. We were in shock. I was in Canada, far away from home and my father; They are in Thailand. The website significantly helped me to understand and be able to investigate more about VHL. It helps my family to know that there are other families out there facing the similar situations like us. But we still have hope for our future.
I've personally experienced the results of this organization in...
Since my family is in Bangkok, Thailand. I'm the only one who benefits most from the information that the organization provide.
How frequently have you been involved with the organization?
When was your last experience with this nonprofit?
MY ROLE:General Member of the Public & N/A.