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LAM Foundation
June 10, 2010

Sue Byrnes was the first person I talked with after receiving my diagnosis of Lymphangioleiomyomatosis (LAM). She calmed my fears, sent me information about the disease and about the Foundation and told me about the LAM patient Listserve. This is how my education about a disease I had never heard of began and continues to this day.

The Great!

I've personally experienced the results of this organization in...

This organization had provided funding for research and treatment trials. The information gained from the funded research and treatment trials has given hope that a treatment and possibly cure will be found for LAM.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

The friendly, helpful staff

The kinds of staff and volunteers that I met were...

knowledgable about LAM, friendly and truly concerned about the welfare of those diagnosed with LAM

If this organization had 10 million bucks, it could...

find a cure for LAM

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

MY ROLE:
Client Served & I was diagnosed with LAM in June of 2002.