My Nonprofit Reviews
Review for LAM Foundation, Cincinnati, OH, USA
I was formally diagnosed with LAM, November 2009. I had Sue and the rest of the foundation walking by me side by side through the entire process. They helped me find a doctor who was familiar with LAM and get great care. They also are available at any time to answer my questions. They have made me feel less lonely, having such a rare disease. They make us feel like a great community. We have a site where we can talk to other women in all different phases of the disease, and from all over the world. To have a rare a disease, the LAM foundation is the best.
What I've enjoyed the most about my experience with this nonprofit is...
the connections I have made through them with the other woman with LAM.
The kinds of staff and volunteers that I met were...
so caring. They took time to answer all my questions, guide me to he best resources, and simply provide me a listening ear when I needed to talk.
If this organization had 10 million bucks, it could...
bring more researchers together to work on a treatment and hopefully some day a cure!! It would save woman's lives all over the world.
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?