My Nonprofit Reviews

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jeanne10

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1 reviews

Review for LAM Foundation, Cincinnati, OH, USA

Rating: 5 stars  

I was formally diagnosed with LAM, November 2009. I had Sue and the rest of the foundation walking by me side by side through the entire process. They helped me find a doctor who was familiar with LAM and get great care. They also are available at any time to answer my questions. They have made me feel less lonely, having such a rare disease. They make us feel like a great community. We have a site where we can talk to other women in all different phases of the disease, and from all over the world. To have a rare a disease, the LAM foundation is the best.

What I've enjoyed the most about my experience with this nonprofit is...

the connections I have made through them with the other woman with LAM.

The kinds of staff and volunteers that I met were...

so caring. They took time to answer all my questions, guide me to he best resources, and simply provide me a listening ear when I needed to talk.

If this organization had 10 million bucks, it could...

bring more researchers together to work on a treatment and hopefully some day a cure!! It would save woman's lives all over the world.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

Role:  Client Served & I have LAM. I am able to use the materials they send out to also spread the word.