I've personally experienced the results of this organization in...
I was part of the MILES trial that the Foundation funded. It was because of them I developed a relationship with the Cleveland Clinic, where I hope to get listed for a double lung transplant- the only treatment open to LAM women.
What I've enjoyed the most about my experience with this nonprofit is...
The information avialable- up to date! The caring way each and every one of us are treated. The fact I was allowed to participate and make a difference!
The kinds of staff and volunteers that I met were...
They are warm- and approachable, and care about every single LAM patient they come in contact with.
If this organization had 10 million bucks, it could...
FIND A CONCRETE TREATMENT FOR LAM.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?