June 9, 2010
My son has VHL we have dealt with it as a family since 1998. He is the only and first case in our family. VHL Family Alliance has been there as a support, listening to our problems, giving us information about the disease and guidence on where to get more information. They are invaluable to our family.
I've personally experienced the results of this organization in...
Finding the proper health care.
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
MY ROLE:Client Served & A mother.