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flavia

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LAM Foundation
June 9, 2010

My Name is Flávia Patitucci Sobroza. I am 45 years old and have a 15 years old daughter named Úrsula. I was diagnosed with LAM in 1994 during my pregnancy but I am sure that LAM starts it's symptoms at least 5 years prior my pregnancy. In 1994 not much was known about LAM in Brazil. In 2002 I found The LAM Foundation and my life changed. I received lots of information about the disease, the Foundation's work, and also NIH LAM Protocol. I have attended LAMposium since 2003 Due to The LAM Foundation I learned enough about LAM to share all this information with other Brazilians LAM Patients who have never heard anything about LAM and mostly don't speak English.

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The Great!

I've personally experienced the results of this organization in...

my life when I didn't know nothing at all about LAM and Sue Byrns provide me all informations I needed.

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How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

MY ROLE:
Client Served & I am a vice president of ALAMBRA - Brazilian Association of LAm and I am also a lambassador on WLPC and togheter all foundations helps patients and families t6o deal with thiis disease.