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flavia

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1 reviews

Review for LAM Foundation, Cincinnati, OH, USA

Rating: 5 stars  

My Name is Flávia Patitucci Sobroza. I am 45 years old and have a 15 years old daughter named Úrsula. I was diagnosed with LAM in 1994 during my pregnancy but I am sure that LAM starts it's symptoms at least 5 years prior my pregnancy. In 1994 not much was known about LAM in Brazil. In 2002 I found The LAM Foundation and my life changed. I received lots of information about the disease, the Foundation's work, and also NIH LAM Protocol. I have attended LAMposium since 2003 Due to The LAM Foundation I learned enough about LAM to share all this information with other Brazilians LAM Patients who have never heard anything about LAM and mostly don't speak English.

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

Role:  Client Served & I am a vice president of ALAMBRA - Brazilian Association of LAm and I am also a lambassador on WLPC and togheter all foundations helps patients and families t6o deal with thiis disease.