June 9, 2010
I was diagnosed with LAM in 2003, and at the time, I had seldom been sick and never in the hospital except to have a baby! Overnight, my life changed, and The LAM Foundation was there to provide information, guidance, connection with other women who have LAM, leadership, research, fund raising, and, in a word, HOPE! They all work incredibly hard for LAM patients, to help fund research, to fund and encourage the formation of LAM clinics all over the world, educational outreach through pamphlets and networks of doctors and health professionals, and even drug trials - amazing for a disease that affects such a small number of women. Their annual conference, LAMposium, brings together LAM patients, researchers, doctors and health professionals for a time of absolute fun and also education, information and fund raising. I can't say enough good about the LAM Foundation!
I've personally experienced the results of this organization in...
Being able to participate in the MILES Trial at Cleveland Clinic, attending LAMposium, and being a part of the Listserv that the Foundation provides for women with LAM.
What I've enjoyed the most about my experience with this nonprofit is...
Finding such a source of hope and information.
The kinds of staff and volunteers that I met were...
Energetic, dedicated, and top-notch.
If this organization had 10 million bucks, it could...
Fund more research projects and LAM clinics throughout the world.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
Client Served & I contacted the LAM Foundation for help.