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MICHIGAN LYME DISEASE ASSOCIATION
July 25, 2013

The Michigan Lyme Disease Association has been a beacon in the fog of living with Lyme disease. I have learned so very much about the various issues involved in trying to get a proper diagnosis and in trying to procure appropriate medical care. When a member has a problem, he/she can rely on other members to provide helpful suggestions. And, when it comes to knowledgeable leadership, Linda (the MLDA president) is the best. I am thankful for the support of the MLDA in my life living with Lyme.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2013

MY ROLE:
Client Served

MICHIGAN LYME DISEASE ASSOCIATION
April 5, 2013

The Michigan Lyme Disease Association is committed to educating the community at large, and to supporting, and assisting those who are afflicted by the tick-borne illness, Lyme disease. Its president, Linda Purdy Lopoes, is knowledgeable, kind, and always available to help. Through the MLDA, I have become an informed patient. I have also found a group of very kind members who are ready to lend a helping hand, an eager ear, or a shoulder on which to cry. Annual fundraisers help defer some of the costs of meeting its goals. Monthly support group meetings are open to anyone who wants to attend. Newsletters are sent out once or twice a year. There is also a Yahoo! support group. Informational booths are set up by the MLDA at various events throughout the year (such as dog shows). The MLDA also sends out literature to medical professionals and participates in educational conferences so as to better inform doctors, nurses, etc on how to diagnose and treat Lyme disease.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

MY ROLE:
Client Served

MICHIGAN LYME DISEASE ASSOCIATION
June 9, 2010

The Michigan Lyme Disease Aasociation has helped me in a number of ways. I was diagnosed with chronic Lyme disease after suffering for over a year with incorrect diagnoses. Feeling overwhelmed by the diagnosis and prognosis, I turned to the Michigan Lyme Disease Association. Not only is it a valuable resource when it comes to understanding Lyme disease and its co-infections, but it provides up-to-date news blasts about research and treatment. The on-line Yahoo! group provides an easy way to connect with others who suffer in the same way that I do. Members of the Yahoo! group share their experiences, their treatment protocols, their prayers, and emotional support. Lyme disease is insidious and scary. The Michigan Lyme Disease Association helps to de-mystify this horrendous affliction. The MLDA also organizes informational forums and area support group meetings. At these meetings, those who suffer from Lyme are able to listen to experts on treatment, nutrition, lifestyle, etc. and are also given time to share. Life is tough when one has Lyme disease. MLDA makes it easier to live with the challenges a Lyme sufferer faces.

The Great!

I've personally experienced the results of this organization in...

procuring a referral to a Lyme-literate physician, in gaining an understanding of Lyme disease and its co-infections, and in receiving caring emotional support as I face the challenge of Lyme and its treatment.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

MY ROLE:
Client Served & I am part of the on-line Yahoo! support group. As such, I am able to provide emotional support as well as information to other members.