June 7, 2010
I have had MG 16 years. When one eye closed, I checked with several local doctors, who could not identify the problem then. Mayo Clinic Neurologist quickly diagnosed the MG, with a simple Tensilon Test. Then a friend recommended the Kansas City Myasthenia Gravis Association. The local chapter provided a free clinic; provided a Neurologist that could diagnose and treat the symptoms. They continue to support patients and family with clinics; monthly education meetings; and contacts with others who have MG.
The Great!
I've personally experienced the results of this organization in...
When first diagnosed with Myasthenia Gravis, I attended the free clinic; which is offered monthly. Since connecting with a Neurologist who knows Myasthenia Gravis, I attend the Monthly local Myasthenia Gravis Association meetings, for new information.
More feedback
What I've enjoyed the most about my experience with this nonprofit is...
They really care about patients and family.
The kinds of staff and volunteers that I met were...
Helpful, friendly, supportive
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
2010
MY ROLE:
Client Served & I recommend the local MGA Association to anyone with MG symptoms.