I've personally experienced the results of this organization in...
Medical support and direction. Support in others who have the same disease. This organization has helped open doors that were closed to me.
What I've enjoyed the most about my experience with this nonprofit is...
The community and support
The kinds of staff and volunteers that I met were...
Helpful and encouraging.
If this organization had 10 million bucks, it could...
Support grants to find a cure for this disease and offer more support individuals with or families with VHL.
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?