June 5, 2010
The information I have received from the family alliance about my vhl disease has been very important to my health. Were it not for the cutting edge information I have obtained over the years, I truely believe I would not be alive today and still be in relatively good health.
I've personally experienced the results of this organization in...
successfull Adrenal Gland, Brain, and Spinal surgical decisions
What I've enjoyed the most about my experience with this nonprofit is...
up to date information
If this organization had 10 million bucks, it could...
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
MY ROLE:General Member of the Public & gained knowledge that helped keep me alive.