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curlyrick

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1 reviews

Review for VHL ALLIANCE, Boston, MA, USA

Rating: 5 stars  

The information I have received from the family alliance about my vhl disease has been very important to my health. Were it not for the cutting edge information I have obtained over the years, I truely believe I would not be alive today and still be in relatively good health.

What I've enjoyed the most about my experience with this nonprofit is...

up to date information

If this organization had 10 million bucks, it could...

solve VHL!

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

Role:  General Member of the Public & gained knowledge that helped keep me alive.