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michellec

362 profile views
2 reviews

Review for VHL ALLIANCE, Boston, MA, USA

Rating: 5 stars  

I am so thankful to have the VHLFA as a valued resource and partner in my son's medical care! I am counting on the medical research to lead to a cure for VHL.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Role:  Volunteer

Review for VHL ALLIANCE, Boston, MA, USA

Rating: 5 stars  

VHLFA has been such an awesome resource of support both emotionally and practically! When local doctors wanted to remove my son's adrenal glands, they were there to explain to me why that was not a good course of treatment for someone with VHL. I have also met others with similiar health issues, who have been amazing examples of strength. I value the people involved with VHLFA - it is good to know you don't have to walk this road alone!

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

Role:  Donor & donated money for medical research.