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ahaughey

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1 reviews

Review for VHL Alliance, Boston, MA, USA

Rating: 4 stars  

The VHLFA is THE source for VHL patients to get help and feedback on any issue one may have. They provide guidance and physical and emotional support fo those of us and our families who have this terrible disease. Whenever I have questions or need help in locating a Dr. with a particular specialty, Iknow I can count on the VHLFA for help and comfort.

I've personally experienced the results of this organization in...

I needed a 2nd opinion on type of brain tumor that I have and the VHLFA connected me with the "right" Dr. at the NIH and I had answer within a week!

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

Role:  Client Served & I contacted VHLFA for guidance.