June 2, 2010
The Pacific Northwest Friends of FSH Research is a relatively small but huge in impact non-profit begun by the family of a son with this type of muscular dystrophy. The Colellas found very little in terms of resources, help, research and knowledge about this disease which is more common than you might think. Out of their frustration with the existing situation some 6 plus years ago, they formed the FSH organization and operated out of their own home. Their dedication to this cause has had a tremendous impact on the amount of attention this disease is now receiving and on the amount of research dollars available to look for a cure and/or treatment for the condition. The operation of the organization is bare-bones with very little overhead and lots of energetic volunteers. It is amazing what this non-profit has achieved in a relatively short amount of time.
I've personally experienced the results of this organization in...
my understanding of FSH type of muscular dystrophy.
How frequently have you been involved with the organization?
About every six months
When was your last experience with this nonprofit?
MY ROLE:Volunteer & Helped with the Annual Gala and Silent Auction.