June 2, 2010
The Pacific Northwest Friends of FSH has raised and distributed funds to increase research in the cause and ultimately the treatment of facioscapulohumeral dystrophy. Through pilot project funding as strategic support of critical research bottlenecks, the Friends of FSH has fostered the development of a large research collaborative group that includes researchers in the pacific northwest as well as national and international FSH researchers. The foundation has made a tremendous impact on developing a path forward in this difficult disease. Tell your story here and help others understand this charity
I've personally experienced the results of this organization in...
I have personally witnessed the impact on the research community that this organization has made.
How frequently have you been involved with the organization?
About every six months
When was your last experience with this nonprofit?
MY ROLE:Professional with expertise in this field & Researcher in the field of FSHD.