I have LAM, and the week that I was diagnosed, I contacted the LAM Foundation and have been so greatful for them! They are all so kind and caring, and have made things so much easier for me. They have offered literature and advice more times than I can count. I also am involved in the MILES clinical trial through the LAM Foundation, and it has also been my saving grace. The LAM Foundation is such a greatly put together foundation. Very organized and incredibly helpful. I am so blessed to know of them and have them as a resource!