May 24, 2010
I was diagnosed with Fuchs' Corneal Dystrophy 20 years ago. For a long time I was not able to find much information regarding this illness. The Corneal Dystrophy Foundation website solved that problem. The site and the support group provide a wealth of information. Suggested questions for your doctor and explainations of the testing and disease progression are especially helpful. I was able to attend one of the bi-annual seminars where experts present the latest findings and answer questions. Eventually I made a decision to have cornea transplants in both eye and am now Fuchs' free, thanks in no small part to the Corneal Dystrophy Foundation.
I've personally experienced the results of this organization in...
dealing with the disease over the last 5 years and coming to the decision in 2009 to undergo cornea transplants.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
MY ROLE:Donor & I received valuable information and support regarding Fuchs' Cornea Dystrophy.