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NATIONAL UTERINE FIBROIDS FOUNDATION
May 17, 2010

Several months ago, after feeling lousy for quite some time and after a variety of doctor’s appointments to try to figure out what was causing my problems, I was diagnosed with uterine fibroids (benign tumors of the uterus). I’d never heard of fibroids before (even though I now know that many women have them!) and was shocked when my obgyn recommended hysterectomy as my treatment option. At 48 and not yet experiencing menopausal symptoms the thought of a hysterectomy that might hasten my passage into menopause was not at all appealing. I was also shocked by the attitudes of some with whom I spoke both inside and outside the medical community who very cavalierly said at 48 you don’t need your uterus anymore so just have a hysterectomy. This thinking was so counter-intuitive and upsetting to me. As someone who believes that all our organs are intertwined and dependant on one another and serve a multitude of purposes for overall wellbeing, I felt surely there was a better way to deal with my fibroid problem. I am grateful to be living in the age of the Internet and will be forever thankful to Carla Dionne for sharing her own journey through the fibroid maze (see http://www.uterinefibroids.com/) and for establishing the National Uterine Fibroid Foundation (NUFF.) Through NUFF I was quickly directed to very informative web sites on fibroids and fibroid experts that gave me hope that I had other options other than hysterectomy. More importantly, I joined the NUFF sponsored free online Yahoo Fibroid Support Group http://groups.yahoo.com/group/uterinefibroids that has proved to be an invaluable resource for me on so many fronts – from tips on how to deal with various fibroids symptoms, to insights on pros and cons of various treatment options as well as recommendations on fibroid experts to see. For any woman anywhere in the world confronting fibroids and how to treat them, joining this support group will be the best thing you can do to help yourself get the help, support and medical direction you need. Thanks to NUFF and the online support group, I’m happy to report that I recently underwent laparoscopic and hysteroscopic surgical removal of my fibroids under the care of an excellent fibroid specialist and am feeling better than I can ever remember!

The Great!

I've personally experienced the results of this organization in...

I was able to easily access very useful resources to learn I could treat my fibroid problems without having to have a hysterectomy. Additionally, I received invaluable support in a multitude of ways from other women on the online fibroid support group.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

MY ROLE:
General Member of the Public & Used NUFF's web site as a resource and joined the organization's online yahoo fibroid support group.