Endometriosis Research Center and Women's Hospital, Inc.
May 15, 2010
I was recently diagnosed after many years of looking towards doctors to figure something out, something more than just putting me on b/c and telling me it was "normal" or, my favorite, "it's all in your head." Now that I have been diagnosed, I am fighting for relief.
My 1st doctor gave up on me after 2 shots of lupron (did not laser the endo off during surgery) didn't help my pain, and now refuses to treat me as she has "cured" my endo and the pain is caused by something else (colon/bowel) and that the extreme pain during intimate acts with my husband is normal and after I loosen up and get used to it the pain will cease (not the case.) After that appointment, I was in disbelief. I felt like I was starting at square one again, but this time I KNEW I have endo. So I went looking for support, someone who might know a bit more than I do and ask for advice.
I must say, the ladies of the ERC and all the ladies involved are so kindhearted and welcoming. They are all so caring and supportive, it made me feel like I still have hope. I still have a chance of finding some relief-even if only temporary. It feels like such a bond - like an unspoken family or sisterhood. I finally feel as if I belong - I'm not crazy and people do understand me.
The ERC has restored my hope and faith that one day, I may be able to live a semi-normal life and the ladies are pushing me to look this disease head on, not let it defeat me. This I will not do. I have been defeated long enough, and now I am going to take life by the horns and stare Endo right in the face and let it know that it will NOT win.
Thank you for all you do, everything you do is such a huge help to all of the ladies fighting this disease daily. I can only hope that soon enough the world will begin to learn more and more about this crippling disease so that they can begin to understand even only a tiny bit about Endo and those of us living with it.
I've personally experienced the results of this organization in...
Feeling empowered again. Feeling like I have somewhere I belong and I'm no longer an outsider. There are women out there that actually do understand what I am going through and it isn't all in my head.
What I've enjoyed the most about my experience with this nonprofit is...
having a sense that I belong, that other women actually understand what I am going through.
The kinds of staff and volunteers that I met were...
I have not met any yet. Just recently found the group.
If this organization had 10 million bucks, it could...
How frequently have you been involved with the organization?
When was your last experience with this nonprofit?
General Member of the Public & I have only researched the website, I have just recently found this organization..