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jen11

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102 Profile Views

What I want to do

be a teacher to my children, educate others about endometriosis, travel to Korea to see my children birthcountry with them

What matters to me

endometriosis

What inspires me

my friends, a touching story, my children

NY USA


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Endometriosis Research Center and Women's Hospital, Inc.
May 13, 2010

I was diagnosed with endometriosis in 2000. Before then, I knew that something was wrong but didn't know why I was in such pain. This organization answered all of my questions before each one of my surgeries (January 2000, August 2002, and July 2008). They helped me understand endometriosis better by having important information on their website and in print. I was always afraid to speak in public and still am at times. They gave me my voice to help others with this disease. I spoke in front of the Lincoln Memorial in 2001 because of them at an National Endo walk. I opened up to family and friends about my disease and what it has done to me. I would have never done that before. I participated in every candle fundraiser that I could since my official diagnosis because I feel that this organization definitely could use the help. To this day, ERC have continued to be there for me answering my questions, lending a shoulder (be it a long distance one) to cry on, be a sounding board, be supportive of my husband as I go down this road of endometriosis, and more. I don't know where I (or my family) would be without them.

The Great!

I've personally experienced the results of this organization in...

in my daily outlook on life. This organization taught me to stand up and stay strong even when faced with horrible news. They educated me on endometriosis so that I don't have to be a victim of this disease but somebody who takes action.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

the friendships that I have struck up because of this organization. They have been there when we adopted our 3 children and have been extremely supportive through everything that I have been going through.

The kinds of staff and volunteers that I met were...

very kind, helpful, and if they didn't know the information immediately they would get back to me asap.

If this organization had 10 million bucks, it could...

change the world of endometriosis. Help millions of women here by empowering themselves more, research a cause/cure for this disease, and more.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

MY ROLE:
Volunteer & I received help from this organization that helped me gain my voice to help others.