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GIRL POWER 2 CURE INC
May 11, 2010

When my daughter was diagnosed with Rett Syndrome in September 2008, I immediately needed to find a place for support and a place where I felt I could use the pain of such a devastating diagnosis to help find a cure. Girl Power 2 cure was a perfect fit. Kelly Butler and Ingrid Harding welcomed me with open arms and helped to give me a feeling of empowerment - that we could beat the monster that had taken over our girls. I was invited to become a member of the Mother's Advisory board and with it the opportunity to connect with other families all around the world, who are struggling everyday with this little known disorder. Being able to help others has provided me with a huge amount of strength and strength to others!

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The Great!

I've personally experienced the results of this organization in...

I have had the one on one contact with both Kelly Butler and Ingrid Harding as well as other Rett Families all over the world. Together we have participated in Dress Up 2 Cure, Rett Syndrome Awareness Month and Rockin' For Rett Events.

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What I've enjoyed the most about my experience with this nonprofit is...

being able to connect with other families who struggle daily with the diagnosis of Rett SYndrome.

The kinds of staff and volunteers that I met were...

AMAZING and always willing to lend me an ear.

If this organization had 10 million bucks, it could...

make a significant contribution to the scientific research needed to find the cure.. Rett Syndrome has been proven reversible in mice models.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

MY ROLE:
Board Member & Mother's advisory Board Member and Mom to daughter with Rett Syndrome.