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CENTRAL NERVOUS SYSTEM VASCULITIS FOUNDATION INC
March 17, 2010

The Foundation has in charge of the Q & A forum that has zero experience within the health field and is not listed in this organization. She goes by the name "Jill" and clearly should not represent such an important position within the organization. She provides personal stories about her pets. She blocks members access to the Q&A board at her own will. She is not listed on form 990 as required.

The Great!

I've personally experienced the results of this organization in...

Go down as the years pass.

Ways to make it better...

If I had to make changes to this organization, I would...

Be more open to opinion. Break ground for more volunteers. Many more are willing to help. Seek more ways to gain funds and help distribute these funds to those in need.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

Other members.... Treasurer is quite good too...

The kinds of staff and volunteers that I met were...

More concerned about their reputation then the truth

If this organization had 10 million bucks, it could...

Help the lives of many, however the current board members are not experienced for such a task.

Ways to make it better...

The foundation was lead by someone other then Tracey Green

In my opinion, the biggest challenges facing this organization are...

The President Tracey Green and Jill from Q & A (Whispering Angels)

One thing I'd also say is that...

Great foundation idea.... Terrible "management".

When was your last experience with this nonprofit?

2010

MY ROLE:
General Member of the Public & Member.

Review from Guidestar