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Chase The Cure, Inc
November 28, 2013

Having a Child diagnosed with any rare disease is bad enough. The constant worry, time and effort that goes into raising such as child is monumental. It is a constant struggle with the unknown

When a parent find out that their kid/s has NPC, it is like the whole world stops. There are so many things that goes through their mind and so questions to ask. What they need at that moment is compassion and understanding; someone who is willing to listen, explain and help; and help in a big way.

To say that Chase the Cure and specifically and Shannon Reedy go out of their way to help others inflicted with this terrible disease is an understatement. Many parents with kids with NPC will eventually find Shannon and I can guarantee you that she will do everything she can at any hour of the day to help the parents and their kids. She did mine.

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