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painterB

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1 reviews

Review for The Corneal Dystrophy Foundation, San Jose, CA, USA

Rating: 5 stars  

Although my mother had Fuchs Dystrophy and when she died at 105, was nearly blind from it, I never thought about the genetic connection to myself. My thorough glaucoma doctor, who has seen me every three months for years, never thought to test me for it--until I mentioned my history to one of his assistants. As the light bulb went off above his head, it went off for me as well, and of course it turned out that I too had the disease. When I was told this I was panicked, like so many others before and after me, and ran to the computer and found Fuchs Friends, this incredibly helpful group that has made all the difference. The huge amount of knowledge, the pooled experience of so many, the generosity with which the leaders and others give of their time and information, the patience and compassion with which they answer the same questions again and again, the calming effect of their positive message and their knowing so well what they are talking about, without ego getting in the way, their pointing the way to the most skiiled and experienced surgeons---there is simply no parallel to this in my long life's experience. Bob Bellizzi, Delores, Signe, Phil, and so many others in lesser ways, with nothing to gain, give so much to all of us it moves me to tears to think of it. I am waiting for my vision to really become a problem--but I'm in the hands of an excellent corneal doctor in NY who is monitoring me--and I know exactly what my next steps will be when I need to take them, and the peace of mind this gives me is an immeasurably valuable gift, from this superlative nonprofit group.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served