Cranio Care Bears
October 28, 2013
The ladies at CCB are wonderful! When my daughter was diagnosed in 2008 it was probably the scariest moment of my life that far and i faced it alone with no one who could be a listening ear on the many nights i cried wondering why my baby, but she made it thru just fine and our life continued on as normal as it shouldve. then in spring of 2012 she started having severe headaches and back to the drs we went only to find out that she would have to undergo not only one more skull surgery but 2 and that overwhelming feeling that id felt 4yrs earlier returned but thus time i yped into the search box on Facebook "cranio" and up popped an entire screen full of pages that were set up as support bwtwoeks for parents of cranio kids. it is there i git in touch with the ladies at CCB and they were absolutely wonderful, when i had questions they were always quit k to help did an answer if they didn't know it already and the day that my little girl went in fir surgery they made sure to talk to me to see how things were going...they were a great support system! They also sent my little girl a wonderful care package before her surgery that had lots of cool things for her to do during her stay at the hospital and goodies that she loved so much....My emotional well being during my daughters 2nd and 3rd and ICP bolt surgery was so much better than the first time around and that is all because of the wonderful ladies at CCB and all the other wonderful families i have met because of the network of support that is now there....
Ways to make it better...
If I had to make changes to this organization, I would...
NOTHING! they are great!
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