October 21, 2013
I was diagnosed at age 50 with Fabry disease after many years of unexplained symptoms and misdiagnoses. Several other family members have since been identified with this very rare and strange disease. I was forced to retire from my company after 34 years. My treatment is complicated, time consuming and sometimes overwhelming. Without the help and support of PSI I don't know how I would have managed. I am grateful for all the wonderful employees with this great organization and the compassionate services they provide to those of us who face challenging illnesses.
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MY ROLE:Client Served