October 18, 2013
I found this site shortly after having a second child diagnosed with hydranencephaly. Unfortunately our sweet daughter Bristol earned her wings when she was twelve days old. Her sister, Bailey, was fourteen and also had hydran. I had never met anyone that had a child similar to my daughter. I was amazed as I read what other mothers wrote about their children and how similar they were to Bailey. I finally felt like I had someone to relate to. I love how encouraging everyone is and how much they love and are blessed by these children. Unfortunately, our princess Bailey passed away three weeks before her fifteenth birthday. It has only been four months and I am just barely surviving without her being here. I do not know what I would do without the love and encouragement from GHF. It puts a smile on my face to see Bristol and Bailey's hydran brother and sisters loving life and smiling. I especially love the giggles.
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MY ROLE:Client Served