October 16, 2013
Working in the area of rare disease therapeutic research and development, the need to align collaboratively to identify end to end solutions - from drug discovery to reimbursement of new therapeutics- for patients is greatly apparent to truly make transformative changes and accelerate finding cures. Global Genes/RARE Project not only brings patients and patient advocates together, supporting them in finding solutions in the now, but also brings together clinical and industry thought leaders to determine the transformative changes needed to truly make a difference through advocacy, education and research. The team and the community surrounding this organization is unparalleled in its determination and commitment in making a dramatic impact on patient lives.
How does this organization compare with others in the same sector?
How much of an impact do you think this organization has?
Will you recommend this organization to others?
When was your last experience with this nonprofit?
MY ROLE:Professional with expertise in this field