October 14, 2013
I am father to identical twins with a Rare Disease (Niemann Pick Type-C). The Global Genes Project has been invaluable in helping me to better understand how to make progress. From healthcare, to non-profit creation/management, and legislative action, the Global Genes organization has been there for me. As a result, I agreed to join the Board and work to grow this fantastic and much needed role in our community.
Ways to make it better...
If I had to make changes to this organization, I would...
Find ways to raise it's visibility and funding.
Will you volunteer or donate to this organization beyond what is required of board members?
How much of an impact do you think this organization has?
Will you tell others about this organization?
When was your last experience with this nonprofit?
MY ROLE:Board Member