October 9, 2013
I'm a family member of a VHL Warrior. We found VHLA earlier this year when going through another surgery. What a relief! First, the resources available (especially the handbook) have been invaluable! In addition to improving our own knowledge, we've been able to educate doctors in our area thanks to VHLA. Second, the have a connection to a community of caring, kind, knowledgeable, and driven people is extremely comforting. Each person I've had interaction with from VHLA has responded promptly and with genuine care of my personal interest. I feel grateful we have them! If you have to have VHL (or have a family member with VHL), at least you get VHL Alliance too!
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MY ROLE:Client Served