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Robin82

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2 reviews

Review for Mesothelioma Applied Research Foundation Inc, Alexandria, VA, USA

Rating: 5 stars  

In the fall of 2007 my fiancee Brian was diagnosed with mesothelioma. Needless to say were were devastated. This being a rare cancer, we knew we had to seek out a Dr and hospital who dealt with this cancer on a regular basis to give Brian his best chance of survival.
I had read about Mesothelioma Applied Research Foundation (MARF) in a nursing journal only 1 month prior to Brian's diagnosis. I did not realize at the time how serendipitous that was. I found that article and contacted them. I spoke with the nurse practitioner, Mary, who ultimately helped guide us all the way through the 2 years of treatment with where to find resources and physicians, advice for chemotherapy related issues, and even just listening a time or 2. I believe in my heart that Brian would not have had those 2 years had it not been for this organization and their expertise, guidance, and knowledge of leading experts in this field. Thank you so much for all you do.

Role:  Client Served
 

Review for Mesothelioma Applied Research Foundation Inc, Alexandria, VA, USA

Rating: 5 stars  

My fiancee Brian Holton was diagnosed with pleural mesothelioma in October of 2006. As one might imagine, we were devastated and did not know where to turn as the oncologist Brian had initially seen had no idea what to do with him. It took him 4 weeks to get around to ordering a biopsy for Brian. Fortunately one of my co-workers had seen a current article about mesothelioma in a medical journal and the Mesothelioma Applied Research Foundation (MARF) was featured in this article. It had contact information for Mary Hesdorffer RN, NP and I contacted her straight away.

Mary called me back the next day and spoke to me at length about mesothelioma and what our next steps should be. She put us in touch with the experts at New York-Presbyterian Hospital where there were doctors and nurses who dealt with this rare cancer on a regular basis. Over the next several months of chemotherapy Brian's tumor shrunk by 60%. However within that first year Brian's health insurance no longer allowed him to seek treatment out of state and again Mary Hesdorffer, through MARF, assisted us in finding a capable doctor. Also through MARF I was able to connect with other patients and caregivers going through the same thing we were which was a blessing for us.

As Brian's cancer progressed the local oncologist ran out of options for Brian. I got in touch with MARF, and Mary again put us in touch with a researcher at the National Cancer Institute, a division of the National Institute of Health, who specialized in mesothelioma. We went for treatment for several months until finally Brian succumbed to mesothelioma in 2008.

I believe that the two additional years Brian survived after his diagnosis, and they were good/happy years for us, was possible because of the expertise and help of this wonderful organization.

If I had to make changes to this organization, I would...

provide additional funding for research and patient outreach/education

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served