My Nonprofit Reviews
Review for Power Of Pain Foundation, Chester, VA, USA
My daughter has suffered with CRPS for approximately 3 years now and we have truly been through it all when it comes to doctors, treatments, SCS, etc. We have tried everything including holistic and alternative therapies - in fact, some awful treatments such as ketamine infusions had been tried time and time again. As you can imagine, we were beginning to feel as though there was nothing out there for her as the CRPS continued to spread. My daughter often spoke of how she felt no one understood her and of how she felt incredibly hopeless based on her situation and increasing chronic pain.
So, I can't begin to thank God enough for putting The Power of Pain Foundation and all the hope that has come with them into our lives! 'Hope' is exactly what was missing! We first encountered this organization and Barby and Ken Ingle at a pain conference last year (2012). Like I said, they have been amazing! Not only have they been available pretty immediately for any and all questions via email or twitter (this response time goes up in an emergency. It's amazing how much they care, this includes the ambassadors), but Barby was able to direct us towards the book "Remission Impossible" which for the first time really broke things down and actually gave us a game plan - something that I know so many other CRPS patients are lacking. I also have to hugely applaud Illinois ambassador Chris Greulich for being so patient and extraordinarily helpful in terms of helping my family figure out insurance for my daughter's very costly treatments. Again, thank you Lord for the Power of Pain Foundation!!!
Concluding, I don't know what we would do without The Power of Pain! The hope and community alone has been enough to allow for victories we only dreamed of for her before! I've read a few of the other reviews and I urge any of you with negative things to say simply to write in and ask for what it is that you're looking for. I have no doubt that they'll be able to accommodate you in the same way that they have so kindly accommodated us.
THANK YOU POWER OF PAIN!!!
If I had to make changes to this organization, I would...
Provide more funds to give it a greater nationwide presence.
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