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Janice Rivera

54 profile views
1 reviews

Review for Power Of Pain Foundation, Chester, VA, USA

Rating: 1 stars  

This organization has done NOTHING to help patients. They are interested in raising funds for their own purposes. I have suffered from CRPS for years, when I contacted them for advice and help, they were unhelpful and asked me for donations. All the 'great' reviews on this site are from Board members.

If I had to make changes to this organization, I would...

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Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

None

When was your last experience with this nonprofit?

2009

Role:  General Member of the Public

I think that you have us confused with another charity. We keep track of all phone calls to our ambassadors lines through Google voice and there is no record of your call. As this site keeps track of who leaves comments it is clear that your "all board members" is actually 6 of 33 reviews. All of our education programs for the past 7 years have been offered FREE to healthcare providers and the public (including/and especially patients, their families and friends). Just yesterday we hosted another large conference free of charge that received local media attention, was broadcast live so anyone in the world with internet access could get the information if they weren't able to attend in person, had top doctors from the pain community as presenters, provided breakfast, lunch and snack as well as bags full of resources and tools for the in-person attendees to use at home after the conference. Our mission is clearly stated on the about us tab on our website www.powerofpain.org. The Power of Pain Foundation’s mission is to educate and show support for Chronic Pain Patients, specifically those with Neuropathy Pain conditions. We fulfill our mission by: Promoting public and professional awareness of Neuropathy chronic pain conditions, Educating those afflicted with these diseases, their families, friends and healthcare providers on the disabling pain it causes, and provide action-oriented public education, and pain policy improvement through activities and efforts to eliminate the under treatment of chronic pain. Once again leading me to the conclusion, that you have our foundation mixed up with another.