September 13, 2013
Global Genes is an a true assist and leader in the rare disease community. They offer support, resources and information to both patients and rare disease organizations. When I began my work as an advocate for Cryoglobulinemia they shared with me the contacts and network connections that would benefit me most at the time. Through their support and those within that network the Alliance for Cryoglobulinemia is establish. It is my honor as a Global Genes Advocacy leader and committee head to join their efforts as they develop and strengthen strategies for the Rare Disease community.
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MY ROLE:Client Served