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SICKLE CELL AWARNESS FOUNDATION INC
September 12, 2013

Sickle Cell Awareness Foundation Corp Intl, Was founded by Syd and Merlene Sotillo, we started this organization because he(SYD) and sister Cathy were tired of the treatment by ER and Hospital staff, Sickle Cell Disease can be devastating, people with SCD often experience debilitating pain episodes, entrapment of blood within the spleen, severe anemia, septicemia, meningitis, stroke, acute lung complications, acute chest syndrome, bacterial infections and other life threatening complications. It is a complex disorder, which can affect several of the body's system. It requires specialized comprehensive and continuous medical care to achieve the best possible health outcome for the individual. Currently, the most effective methods to treat or prevent the most severe complications are monthly blood transfusions, or where possible, a Bone Marrow Transplant. We provide Genetic counseling, blood drive, health fairs, 5 k walk/run, monthly support group, On April 20th of last year Syd passed away from complications of this disease, he was funny, loving, and a great motivator.

Ways to make it better...

If I had to make changes to this organization, I would...

I would design more educational programs, aim to increase awareness and enhance preventative measures of sickle cell. Collaborate with other community based organizations to participate in awareness programs concerning sickle cell disease.

More feedback

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

MY ROLE:
Volunteer