Miracle Flights for Kids
September 7, 2013
Our son was born with a congenital birth defect called Chiari Malformation-1. It is a grossly under diagnosed birth defect. It involves the cerebellum sagging down into the spinal column because the skull is too small in the back to house the brain properly. It causes debilitating headaches, neurological deficits, and paralysis. There are many other symptoms that I won't take the time to describe here. I heard about Miracle Flights from a friend we made at Ronald McDonald House in New York. It has been quite an financial and emotional journey and Miracle flights made it possible for my son to have his Third brain surgery this year. We are so grateful and very blessed to have this option now for our son's specialized medical care far from home, as we are in Utah. New York is quite a jaunt and expense. THANK YOU!!!!!!
Ways to make it better...
If I had to make changes to this organization, I would...
Ask the size of the patient so that appropriate room can be reserved for more comfort in traveling on long distance flights. My son is 6'6" tall and over 300 pounds of awesomeness, so it was like being a sardine in a hot tin can. I know most patients and their companions are not that big but a little more room on such a long flight would be helpful with such a painful journey! Short flights who cares, it is a small thing to deal with for such a wonderful gift. I can't thank you all enough!!!
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