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CEHmom

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COTA CHILDRENS ORGAN TRANSPLANT ASSOCIATION INC
September 5, 2013

Wow, I am really surprised by the other review. We have had a wonderful experience with COTA. I never expected them to raise the money for us. They are only supposed to be there as a support for YOUR fundraising activities. We have found it extremely helpful to have the backing of such a large 501(c)3. We have done several large fundraisers over a year period and have been able to raise almost 100K. When doing a large event and seeking corporate sponsorships, it is absolutely necessary to have a 501(c)3 of some type. I have known people who tried to fundraise without the backing of a large organization and they had a harder time raising large amounts of money. We have found COTA to be extremely helpful with reimbursements. They are confined by IRS regulations, but that would be true of any organization of this type. You cannot expect to take funds and use them for non-medical reasons. My son has a very complicated condition and his care is often "out of the box." We have found COTA to be very helpful with helping us get things approved when they are medically related but maybe not the typical reimbursement. We usually receive the reimbursement checks within a week. You can also submit medical bills to them and they will pay them directly. I cannot tell you how much it has helped to have the extra funds. It has made our life manageable through a very difficult time. We have been reimbursed for over $40,000 in medical expenses in just one year so that should tell you that it is certainly not impossible to get reimbursements. It upsets me that someone would write a negative review when it sounds like they did not have a very good understanding for what COTA actually does.

Ways to make it better...

If I had to make changes to this organization, I would...

Make the website (the one they create for your child) better and easier to modify.

More feedback

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

MY ROLE:
Client Served