September 5, 2013
Muriel asked me to be her Pacific Northwest Amyloidosis Support Group Co-Facilitator back in 2006. We started with one meeting a year in Portland, grew to two, and now a meeting in Seattle for a total of three yearly meetings. In my opinion, the meetings are professionally run and filled with good medical information. We always have a guest doctor who is an expert in Amyloidosis along with local doctors and other medical staff attending. The LLS joins us to provide medical and financial information as well as lunch for patients. Every meeting we have new people attending as well as regulars who provide helpful tips. I believe we have saved lives by providing the latest medical information available. I contracted AL Amyloidosis in 2002 and remain in healthy remission. Kay
Would you volunteer for this group again?
For the time you spent, how much of an impact did you feel your work or activity had?
Did the organization use your time wisely?
Would you recommend this group to a friend?
When was your last experience with this nonprofit?