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RedJenny62

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SPONDYLITIS ASSOCIATION OF AMERICA
September 3, 2013

Since like many with various forms of Spondylarthritis who are served by this mostly volunteer group, I got very sick years BEFORE I met the diagnostic criteria of Dr.s. So their information was hugely helpful when Dr.s used long words and talked to me about blood tests & XRays. Over the years I've been to several seminars this organization has run for patients to share information, to encourage the right kind of exercise, to answer questions. They've also been active in getting the word to first responders in our various communities how we should be intubated without damaging our vulnerable stiff necks. With only a few paid employees, this largely volunteer organization has greatly served a large group of patients and their families.

Ways to make it better...

If I had to make changes to this organization, I would...

Have more patients get involved as volunteers & donate.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

MY ROLE:
Client Served