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Idahobob

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Muscular Dystrophy Association
September 3, 2013

Our grandson has Duchennes M.D. and we became involved with local fundraising and local telethon and after chairing some of these events and seeing how money was spent on staff and gifts and then not being able to get any accounting I was done! The funds available to our grandson were minimal. The big push were the camps and that for the purpose of showing pictures to raise more money! I would never give a nickel to this group.

Ways to make it better...

If I had to make changes to this organization, I would...

Have complete transparency of the financials of every event. There needs to be more contact and real help to patients- whether it is for unreimbursed items like lifts, vans, care, etc. The day to day costs are a big deal for many families.

More feedback

How would you describe the help you got from this organization?

A little

How likely are you to recommend this organization to a friend?

No

How do you feel you were treated by this organization?

Somewhat badly

When was your last experience with this nonprofit?

2003

MY ROLE:
Client Served