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GIRL POWER 2 CURE INC
August 19, 2013

This past summer, I was given the opportunity to work as an intern for Girl Power 2 Cure. In short, Girl Power 2 Cure raises awareness, support, and research funds in an effort to fight Rett Syndrome, which is a debilitating neurobiological disorder that mainly affects females. I loved working for them, to say the least. Not only did I get to meet wonderful people like Ingrid Harding and Cynthia Colalillo, but I was truly a part of something bigger than myself. Before coming in contact with this organization, I was not aware of the devastating effects of Rett Syndrome. I hurt for the girls who experience this and for their families. The work that Girl Power 2 Cure does to empower and aid these girls and their families is INVALUABLE! They are bringing a community together where before rett families were scattered and information on how to care for rett girls was even more scattered. I am very excited to see where Girl Power 2 Cure goes in the future - especially with their proposed program Rett University, which would revolutionize how rett girls and their care teams are taught and connect.

Ways to make it better...

If I had to make changes to this organization, I would...

There are not many things I would change. I wish more people knew about Rett Syndrome! I wish that there was a fully centralized information center for all things that rett families need to know. I wish that rett families felt like they belonged somewhere and were not alone. All of these wishes and more are being fulfilled by Girl Power 2 Cure. There may be nitty gritty suggestions for more social media presence, more exhibition of volunteers, (etc) but the important things are already thriving!

More feedback

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

MY ROLE:
Volunteer