GIRL POWER 2 CURE INC
August 19, 2013
This past summer, I was given the opportunity to work as an intern for Girl Power 2 Cure. In short, Girl Power 2 Cure raises awareness, support, and research funds in an effort to fight Rett Syndrome, which is a debilitating neurobiological disorder that mainly affects females. I loved working for them, to say the least. Not only did I get to meet wonderful people like Ingrid Harding and Cynthia Colalillo, but I was truly a part of something bigger than myself. Before coming in contact with this organization, I was not aware of the devastating effects of Rett Syndrome. I hurt for the girls who experience this and for their families. The work that Girl Power 2 Cure does to empower and aid these girls and their families is INVALUABLE! They are bringing a community together where before rett families were scattered and information on how to care for rett girls was even more scattered. I am very excited to see where Girl Power 2 Cure goes in the future - especially with their proposed program Rett University, which would revolutionize how rett girls and their care teams are taught and connect.
Ways to make it better...
If I had to make changes to this organization, I would...
There are not many things I would change. I wish more people knew about Rett Syndrome! I wish that there was a fully centralized information center for all things that rett families need to know. I wish that rett families felt like they belonged somewhere and were not alone. All of these wishes and more are being fulfilled by Girl Power 2 Cure. There may be nitty gritty suggestions for more social media presence, more exhibition of volunteers, (etc) but the important things are already thriving!
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